What is EDS and what are the symptoms?

What is EDS and what are the symptoms?

Alexandra, the daughter of Green People founder Charlotte Vøhtz, is one of thousands of people to suffer from the symptoms of Ehlers Danlos Syndrome (EDS). Green People is supporting Ehlers Danlos Support UK in its efforts to raise awareness and reduce diagnosis times for this range of conditions.

By Charlotte Twinley

5 Minute read

Green People & EDS

Alexandra, the daughter of Green People founder Charlotte Vøhtz, is one of thousands of people to suffer from the symptoms of Ehlers Danlos Syndrome (EDS)

Green People is supporting Ehlers Danlos Support UK in its efforts to raise awareness and reduce diagnosis times for this range of conditions. Read on to learn about EDS and the symptoms that it can cause.

What is EDS?

The Ehlers Danlos Syndromes are a group of inherited connective tissue disorders which occur due to a mutation in the gene. As connective tissue is in around 80% of our bodies, this means that a connective tissue disorder can affect almost any part of the body.

There are 13 different types of Ehlers Danlos Syndrome (EDS) including hypermobile EDS, classical EDS and vascular EDS. Each type has their own specific set of symptoms but the general characteristics of someone with EDS include having joint hypermobility, skin hyperextensibility and tissue fragility.

It can take as long as 10-15 years for people to be diagnosed, as EDS symptoms are so varied and can often portray other medical conditions (such as IBS for those with digestive complaints). During this time, symptoms and medical complaints can often become worse and patients are not always believed which can lead to the worsening of mental wellbeing and overall health, as some in the medical profession have not heard of Ehlers Danlos Syndrome.

Hypermobile Ehlers Danlos Syndrome

Hypermobile EDS (hEDS) is thought to be the most common type of the syndromes. Whilst it presents with similar characteristics of the other types of EDS, there are individual symptoms that affect those with hEDS in particular. However, these symptoms are incredibly extensive and extremely varied; it is understood as a multi-system disorder.

Hypermobile Ehlers Danlos Syndrome symptoms include:

  • Joint hypermobility (causing partial and full dislocations, along with joint pain)
  • Digestive complaints (constipation, acid reflux, bloating, nausea, food intolerances, stomach pain)
  • Dental problems (bleeding and receding gums)
  • Weakness of the muscles and organ walls (such as in the pelvic floor) that can lead to prolapses
  • Fatigue (extreme tiredness)
  • Easy bruising
  • Stretchy skin
  • Delayed wound healing

It’s important to remember that not everyone with hEDS will have all symptoms as different people are affected in different ways.

Classical Ehlers Danlos Syndrome

Classical EDS (cEDS) is less common than hEDS, although there is no evidence to show how common it is. This type of EDS affects the skin a lot more than the others, despite a lot of types presenting with stretchy skin.

Classical Ehlers Danlos Syndrome symptoms include:

  • Very fragile skin, prone to small tears (especially around the forehead, knees, shins and elbow areas)
  • Significant bruising
  • Widened, sunken scars, due to the easy tearing of the skin
  • Smooth skin with an almost velvet-like feel
  • Raised, thick layers of skin
  • Swelling after exposure to cold, with the skin being red and painful (known as chilblains)
  • Small painful lumps under the skin due to herniations of the fatty tissue underneath
  • Joint hypermobility
  • Muscle weakness and tissue fragility in the internal organs which can cause hernias

Vascular Ehlers Danlos Syndrome

Vascular EDS (vEDS) affects the blood vessels and internal organs and is thought to be the most serious. This is because this particular gene mutation affects an important protein that causes the weakening of vessel walls and hollow organs, such as the heart. It is a rare condition, affecting between 1 in 50,000 and 1 in 200,000 people.

Vascular Ehlers Danlos Syndrome symptoms include:

  • Varicose veins which appeared at a particularly young age
  • Very visible veins
  • Easy bruising
  • Delayed wound healing
  • Fragile blood vessels
  • Particular facial features

Raising awareness of EDS

The Ehlers Danlos Syndromes pose many challenges for people of all ages. One of the greatest challenges, especially at the beginning, is to be able to receive the diagnosis and the support that is needed.

Even though Ehlers Danlos Syndrome symptoms are incredibly varied due to the different types and the different ways in which they affect people, the time it takes to receive that diagnosis is too long.

The Ehlers Danlos Support UK charity has a vision to reduce the time to diagnosis of EDS from 10 years to 10 months.

EDS Support UK

You can read more about this charity at https://www.ehlers-danlos.org/

This post was written by Charlotte Twinley. 

If you wish to republish this content, please credit Green People as the original creator with a link to "What is EDS and what are the symptoms?". Please do not use an affiliate link.

Related articles

everything men need to know about eye creams
Male grooming

Should men use eye cream?

When should men start using eye cream? Which eye cream is best for men with tired eyes? Build your best grooming routine as we reveal everything men need to know about eye creams.

By Hannah Mepham

18/07/2024

4 Minute read

READ NOW
Is face yoga the secret to younger-looking eyes?
Lifestyle

Is face yoga the secret to younger-looking eyes?

Millions have tuned in for TikTok tutorials on face yoga and eye yoga, but do facial exercises for the eyes really work? We look at the evidence around the benefits of face yoga for the eyes and share some of our favourite face-toning techniques.

By Hannah Mepham

18/07/2024

6 Minute read

READ NOW
after sun
Skin care

How does after sun work?

Are you wondering how after sun lotion works and if it is actually any different from body lotion? Find out here and discover natural after sun lotions with added benefits.

By Hannah Mepham

18/07/2024

9 Minute read

READ NOW
Read more articles

1,500+ Five star reviews

Read all Reviews
"One of the best companies I have ever dealt with in my 63 years on this planet!"

Jan B.

Verified Buyer

"Have fallen in love with this product range. They are lovely to use and they work!"

Carole G.

Verified Buyer

"You guys are amazing, continue to love the brand, excited to order from you again!"

Maitreya L.

Verified Buyer

"Super quick delivery, ethical packaging and beautiful products."

Nat J.

Verified Buyer

"I love every product I have tried from Green People, and the customer service has always been excellent."

Maria H.

Verified Buyer

"So glad I have found an ethical supplier with great products!"

Susan B.

Verified Buyer